All A Bunch Of Momsense's Fan Box
Thursday, April 27, 2017
That’s kind of where I’m at.
I’ll open this with the statement that it’s ok. Then I’ll acknowledge that, on some levels, that’s a lie, because it’s not “ok” but it could be so much worse, and I’ve seen so much worse, and had people I care about live through so much worse, that this? It’s pretty ok.
See, my kid? He has a thing inside his head that isn’t supposed to be there. A Pituitary Microadenoma. (Micro! See – that’s good!) Technically, an active Prolactinoma.
All of which are big-ish words that mean that my son has a mass in his pituitary gland that is causing an overproduction of prolactin, a hormone present in all of us, but typically elevated in pregnant and nursing women. It’s small – thus the micro, which clinically means that the MRI shows that it is less than 10mm in size. I don’t have an actual measurement because we haven’t seen the Dr. who can clarify that part for me yet, but micro is better than macro in this scenario.
That doctor visit is still more than a month out, which is both frustrating (A MONTH!? And that is actually TWO MONTHS out from when we got MRI results!?) and comforting (A month + out just reaffirms that this is not life-threatening, this didn’t immediately turn into a next-day surgery and weeks of inpatient care and who knows what else). We will be headed to Indy to meet with a pediatric neurosurgeon first of June, and hopefully that will be the appointment, in what has felt like a flurry of appointments, where we will walk away with a plan. Surgery currently feels like the most likely option, but research (because you know I’ve googled the heck out of this thing, sticking to quality search results like the Mayo Clinic) says that there are options like medication, radiation and even chemo.
The chemo phrase brings me around to another quick, but really important thought. The odds that this mass is cancerous are VERY small. Of these types of masses, only 0.2% are actually cancerous. Those are good odds, and I’ll take them.
So. There it is. A little brain vomit that gives a quick outline on our bump. His bump. This bump in the road.
Sunday, September 20, 2015
Wednesday, August 19, 2015
Last weekend I travelled to the San Diego area for a family wedding, which was gorgeous, so much fun, and a lovely break, but is not at all what I want to write about right this moment. I flew out on Southwest, and if you haven’t flown with them lately, they have added some Wi-fi related offerings to their flights. One such offering is access to select ebook titles via Kobo.
I had started a book a couple months ago on another trip, and had been unable to find a copy via my public library to be able to finish it, so the first thing I did after settling in was check the available titles. It wasn’t still on the list (bummer) but another title caught my eye.
Now, I’m not a big follower of political news shows, but I catch Morning Joe periodically, and really enjoy it. News, politics, humor, antics – all in a well thought out, balanced program. I like it. The interactions between the folks there are honest and genuine. (Don’t believe me? Watch it a few times. The eyerolling alone is proof!)
Mika Brzezinski is one of the co-hosts, and I have found that I really admire her. She pulls no punches, she isn’t there to just look pretty, she is a sharp, witty, intelligent woman. She just… gets it.
She is also an author. The book that caught my eye was hers – Knowing Your Value. I’m not embarrassed to share that I DEVOURED this book. As a woman working in a field that for many, many years was male-dominated (as most are, historically speaking) I knew that many of us are wary of pushing for the equality we deserve and have earned. I don’t know that I had been realistic about how wide-spread the issue was. I would never have considered that Mika, who is such a valuable perspective and voice on Morning Joe, was so undervalued by the powers that be.
She talked about how focused people were on her appearance as well. As a woman who rarely wears makeup, and prefers blue jeans and tennis shoes to skirts and heels, I know that people often initially view me as “lesser”. It’s a sad reality that women are expected to make less, give as much (or more, because they have to “compensate” for the time they are away in a role as mom, wife or other caregiver) and invest more in personal appearance than men.
Now, let me be ABUNDANTLY clear – this is NOT the case with every business. It is not the case for every woman. It is, however, a reality for many women in business. So, with that in mind, if you are a woman in a profession, or a man who works with women, you should consider reading Mika’s book. It is empowering and enlightening.
And if you are on a Southwest flight? It’s a free read at the moment.
Disclaimer: I was in no way compensated for or asked to provide a review of either the book Knowing Your Value or Southwest Airlines. This is simply my sharing of my opinion following my personal direct contact with both.
Wednesday, August 12, 2015
Saturday was a whirlwind of emotions.
Scott's memorial service was live streamed, allowing me to watch from the living room of the vacation home I was staying in for the weekend. As it ended, I walked out the door to head to my cousin's wedding.
One love story tragically cut short as another penned its most passionate chapter to date.
Love is a hard thing. The joy it can bring, the pain it can pour out, the havoc it can wreak. Emotions drive us. As humans, we find ourselves caught in their tides, some days filled with joy and laughter, others with pain and heartbreak, even others with fear, or loathing. Some days are a compilation of all of the above.
Emotions can be hard. They can be discouraging. The can hold us back. They also can be the push we need to fully appreciate all we strive to be.
Saturday, they were swirling. My face was made up, and I desperately tried to avoid tears rolling down my powdered cheeks. Vows were shared, promises of forever, and my heart celebrated for them, while it shattered just a little more for Tracy, for Scott, for a forever cut short. A song, their song, played at the reception, and again, I wept.
Embrace the emotions.
One day, they may be all that is left.
Wednesday, August 5, 2015
I started blogging several years ago, and with blogging came community. I was part of a network called the BlogFrog, a fun discussion board where bloggers gathered to just.. hang out.
I “met” some really great people there. One was this dude named Scott. He was one of a very small number of daddy bloggers in a sea of moms. He was snarky, pulled no punches, and most of all, he was hilarious. He would tell tales about his “4C’s” – the 3 sons and 1 daughter he had with his wife, affectionately just called T.
T – her real name is Tracy – was clearly the love of his life. He shared their love story, how they met on the beach, how they married quickly. How much he supported her being home with the kids, being a mom who chose to extended breastfeed, cloth diaper and home school.
He bitched about how much he hated his job, how he hated the hour long commute each way, and how crappy his bosses were. Talked about getting out of there, finding something he loved and that would support T & the C’s.
He talked a lot about body hair, and PODO (Pants off dance off, for those not in the know. You know – makin’ babies?) He was a pro at making you laugh at the most inappropriate things.
He was also a hell of a friend. When Jeep was raising money for St. Baldrick’s, Scott reached out to a syndicated radio program, The Bert Show, and asked him to share. Bert did, and went above and beyond, making a significant donation to push Jeep over the $3,000 mark in his fundraising.
When I was having a bad day, a tweet from him was good for a smile. Every time.
Until last spring. Scott was found unconscious at work, face down on his desk, not breathing. He had suffered some kind of seizure, and was comatose for days. Eventually, scans showed cancer in his brain.
Scott fought that cancer the same way he did everything else – balls to the wall. He was a big Cross Fit guy, and eventually helped coordinate a fundraiser called Kettle Bells for Brain Cells to help fund brain cancer research, held in June.
On July 15th, 2015, Scott got the news none of us wanted to hear. The cancer, which had appeared to go into remission for a short time, was back. Aggressively. This time, the mass was in his brain stem. He was told to start making arrangements and saying his goodbyes.
Yesterday, August 4th, 2015, Scott, known to many of us as “This Daddy”, lost his battle against glioblastoma. He leaves behind his wife Tracy and four children.
Scott – thank you. I appreciated our friendship. I loved talking football smack with you, giving you crap for refusing to change diapers, and griping about stupid work stuff together. You swore to us all over and over that you were a big asshole. I’ve been watching twitter for a while, pal, and there are an awful lot of us who disagree. There are an awful lot of us who think you’re a pretty damn swell guy. We’ll keep pushing on back here, #stillkickin and fighting the good fight. Forever #BetterThanDying.
We love ya.
@TaxMegan & @ProFBallPlatter
Sunday, August 2, 2015
Saturday, July 11, 2015
Everyone has opinions, just on the off chance you haven't looked at your FB for the last, oh, 10 days or so.
Everyone (EVERYONE.) is entitled to those opinions.
You don't have to agree with theirs, and they don't have to agree with yours.
Voicing opinions is allowed. Understand that sometimes, voicing an opinion has consequences. Be prepared, if you elect to voice your opinion, for consequences.
Attacking one another - verbally, physically, cyber..ly? (You know what I mean.) is NOT OK. It's just not.
Some of you have voiced opinions that differ from mine. I hope at no time have ANY of you felt attacked, belittled or undermined by me.
I have quietly avoided posting much in regards to my opinions because unfortunately, some of you have either lashed out or had others lash out at you. It's hurtful, and I have no room in my heart for hurt, certainly not because I choose to share a thought or opinion.
Here's where I stand.
I stand for love.
I stand for respect.
I stand for honor.
I stand for my fellow man.
I stand so I can lift up, not knock down.
I stand so I can support, not be carried.
I stand for my children.
I stand for my spouse.
I stand for my siblings, my parents, my cousins, my family.
I stand for my path in this world.
I stand for you.
Even if we don't agree. Even if you won't stand for me. I stand for you.